Thursday, October 30, 2014

Happy Halloween (and our recent hospital adventure update)

From left to right: Chris' pumpkin pirate ship, Emily's pumpkin, Zoë's mummy pumpkin, and Griffin's Daniel Tiger pumpkin!



Last weekend we attended a lovely Halloween party at our good friends' house.  Zoë wore her chicken costume for a good portion of the party (and we had to feed a her a minimal amount of M&Ms to keep it on) and I would say it was a hit.  Finding the ideas on Pinterest are easy, but putting them together are not always the easiest!  She hated having the feathers from the boa I had pinned to a white sweater tickle her face and had an especially hard time eating anything because every time she'd bring the food to her mouth she would also get a mouthful of feathers.  Because the feet we had made with rubber gloves over a pair of her shoes were so hard to walk in, she ended up looking more like a chicken because she had to pick her feet up so high each time she took a step.  It was awesome!  And, all of her boyfriends were equally as cute in their costumes.  :)





On Tuesday Zoë came down with a horrific cough that got progressively worse throughout the day.  She was extremely clingy to the point where she wouldn't let me put her down all afternoon and evening.  When we put her to bed and checked on her about an hour later, we noticed that her breathing was really really fast and her entire belly was moving a lot more than usual when she breathed in and out.  Chris called the nurse line where they recommended she be seen by a doctor, so we drove to the ER and arrived at around 10:30pm.  We were immediately brought back to a room in the ER where Zoë had a nebulizer of Albuterol, a chest x-ray, and a dose of steroid.  Her breathing was still really labored and when her x-rays came back the doctor ruled out pneumonia.

Happy to be out of her costume.

By about 3:30am, her oxygen saturation level was steady only because she had a cannula in with a steady flow of oxygen and her breathing was still pretty rapid, so they admitted us.  The doctors finally said she had a Reactive Airway which was triggered by a virus she came into contact with and  could potentially develop into asthma eventually.  By mid-afternoon yesterday the doctor took her off the oxygen since she could keep a steady saturation level, so that was nice.  The nurse let her take a break from being hooked to her heart monitor, too, which was wonderful to let her run around her room (she was in isolation on the Peds floor, so she couldn't take a walk around outside of her room) She stayed overnight last night because they wanted to monitor her some more since her breathing was STILL labored.  At this point, she was getting Albuterol treatments every three hours (from an inhaler, not the nebulizer).
First pumpkin carving as an active participant...
...not really a fan...

Yuck!  Pumpkin guts!
Finally, today they stretched her treatments to every 4 hours and she was doing much better, so they released her this afternoon.  She slept ok last night, but was still a very tired girl from her big hospital ordeal.  And so are we!  Chris is a saint and stayed the night last night with her while I went home to get some sleep and then went to work today.  In the future, we know she'll probably have a few more episodes just like this (but hopefully we can curb them because we'll have an inhaler for her) and it may or may not develop into full-blown asthma.  We were reminded that asthma is a pretty common development for micro-preemies like Zoë, something that had completely been dispelled from my mind since she's been so healthy and caught up development-wise with her peers.  A good reality check that she's not invincible (it's felt that way for these first 21 months of her life!) and a reminder to give her extra squeezes each day because she's such a strong little girl.
Zoë with her boyfriends


Pockets!!!
New rain jacket for a really rainy afternoon outside with dad in the leaves!
We had to postpone her surgery that was scheduled for tomorrow because of all of these complications and it's rescheduled for the day before Thanksgiving (awesome).  I was all mentally prepared for that, too, which is a bummer that I'm going to have to gear myself back up again!

Tuesday, October 21, 2014

Our Little Pumpkin

We went to the Thomasson Family Farm again this year to get pumpkins as a family and had so much fun!  Zoë had a really fun time trying to pick up pumpkins
Leaping pumpkins with Baba and Dedo

Picking the best one!

Beautiful Baba!
Zoë is officially off of the mom-clinginess train, which is wonderful, and she yells "Daddy" as often as she does "Mama" from her crib in the middle of the night or early morning.  :)  She sleeps regularly with Baby, Violet, and her "Ah Ah" (monkey) and insists on carrying all of them around (plus a blankie) ALL. THE. TIME.
Zoë's Entourage

Zoë's surgery is scheduled for October 31st (oh, heck yes she's wearing her chicken costume into the hospital whether she wants to or not).  The doctor is going to do a scope to find out how much of a cleft she has at the back of her throat, and most likely going to inject some gel to thicken her throat to give her approximately a three month window to figure out how to swallow properly.  There's a small chance he'll find a large cleft in which case he'll surgically prepare it while he's in there, but again, that's a small chance.  Two weeks after her surgery she'll have a swallow study to see how well she's doing with the gel.  They'll want to know if she's done less choking when drinking non-thickened liquids and will observe themselves during the swallow study, too.  There's a chance the problem will return when the gel wears off within about three months and they'll try it again to give her more time.  We'll worry about that later.

I am, of course, super nervous, but trying not to think about the surgery.  At least we'll find out what's going on with her and hopefully not have to thicken her liquids any more (ahhhh, to be able to go out to eat at a restaurant and not worry about packing her own beverage before we go).

We are so looking forward to the holiday season and having Jed and Angela back home for Christmas.  Zoë's going to be talking in sentences by that time and there will be pictures with Santa, a trip to Snowflake Lane in Bellevue, Zoolights, and everything else.  YAY!
Touchdown!
Happy Family

Tuesday, September 30, 2014

Sobbing Through September

Our darling little angel is being a little bit of a, um, challenge.


We hope she's teething.  She cries for no reason, demands to be held and then pushes me away (she still on the mom-only train, poor dad).  She is unreasonably (to us) upset about the simplest things and is just not herself in general.  The tears and crying has got to stop!  She goes to bed really easily, so maybe it's a growth spurt, too?  We don't know, but we're hoping that it doesn't last too much longer.

In other great news, she is such a big kid!  She talks and communicates and repeats almost any word we say.  She'll just come out and say, "apple" and point to one and demand to eat it.  It's crazy!  She's even stringing a few words together: "Hi, Joe", "I see".

She dances like a mad-woman when there is music on.  She has started the most adorable waddle walk where she sways back and forth dramatically with her whole body.

She is absolutely in love with Fiona and Joe (although Joe is still less than thrilled with her) and will chase them around and give them hugs.  She's sleeping great again, back to bed around 7pm and then up between 6:30-7:30 (more often on the earlier side than not).

And, her baby is still the love of her life.  She'll chant "Baby! Baby!" in the car, when she wakes up, in the grocery store, anywhere.  She drags her around the house, wraps her up, unwraps her, feeds her, and demands that she sits at the dinner table with us.  She's overprotective and shrieks if any other child comes close to her baby whether she's holding her or not.
Zoë and her beloved baby.
A few weeks ago Zoë couldn't put a puzzle together to save her life.  My parents laughed at how impatient I was while they watched the two of us over a Facetime session.  I couldn't believe she could do all of these amazing things and yet a puzzle was so difficult for her.  It was like she was blindfolded, she wouldn't match shapes or colors and it would drive me up the wall.  About a week and a half ago it just clicked and one day she could do it!  I was so proud of her and now she's a puzzle pro.  :)
Now a puzzle master!

This month has been busy with the start up of school again.  Chris went to Ambler, Alaska for a week to visit Connor, which was a fun new adventure.  Zoë went to the Puyallup Fair twice and, despite our wanting to shove every delicious fair food into her face possible, she just wasn't that into eating, though she did love the animals.


We're heading into fall with lots of fun ahead of us with Halloween, Thanksgiving, and Zoë's second Christmas!!!
Zoë loves getting eggs from the chickens with Baba!

Saturday, August 30, 2014

End of Summer

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It's been a busy month and I feel super guilty for not writing an update.  Zoë's going to have a gap in her baby book!  :)

This summer has been the cling-to-mom-all-the-time summer and it's been a bit rough in that regard.  I feel so badly for Chris because there are times when it can be Mom and Only Mom to help her calm down or hold her or...just be.

The biggest news is that a few weeks ago Zoë had another swallow study and she is not doing any better in that department.  The occupational therapist says it's definitely a timing issue (she just doesn't know how to swallow thin liquids and the timing of her epiglottis closing sucks) but we don't know if it's a timing and structural issue.  Typically, if it's only a timing issue, kids will get better at swallowing and this issue will resolve on its own.  Unfortunately, Zoë's not getting any better at swallowing.  Because Zoë was born so early she may have a cleft in her throat which means that no matter how fast her epiglottis closes there may still be a gap where liquid can go down into her lungs.  The tricky thing is that usually if it's a structural issue, it doesn't matter how much thickener you add and the kid will still have trouble with some of it penetrating into the lungs.  What we've seen consistently is that once we get to "nectar thick", Zoë doesn't have any penetration...so, she's kind of an enigma.  We will be referred to an ENT at Children's Hospital where they'll probably tell us she needs a scope and will have to be put under anesthesia to do it because of her age (too young to be able to explain it to her and too old for her not to be able to fight it).  Once scoped, if they find that it's a structural issue as suspected, they can put in a kind of dissolvable goo that will add structure to the back of her throat and allow her to learn to swallow properly.  The therapist said that usually, but the time it dissolves, kids can deal with the structural difference and do just fine.  Sometimes they go right back to their old swallowing habits at which point she'd need another surgery to add more permanent structure to her throat.

This, of course, terrifies me.  I keep picturing my tiny little baby on a huge surgical table.  It's definitely a new hurdle and one I was hoping we wouldn't have to jump.  But, it's here and this will make her better.  I keep telling myself that this is NOTHING compared to the health problems we could be dealing with right now and that helps a little bit.
Trip to Orkila.  Future Goody Glacier in the house!

In more fun news, we went camping on Orcas Island a couple of weeks ago and had so much fun!  It took us forever to get up to the island (of course, ferries), but we were well prepared for the rain the first night and any bouts of hunger (I WAY overpacked snacks).  We were not prepared for the inconsolable wailing from Zoë at 1 in the morning the first night.  Chris took her into the car and slept with her, uncomfortably, for the rest of the night, bless him.  She did much better the second night.  :)  We went and visited Orkila, which was fun to walk around and share with Chris and picture Zoë there in 8 short years.  We had delicious pizza in Eastsound, walked around the shops, and had marshmallows around the fire (we were lucky to have because the first night there was a burn ban) the second night.  Lots of fun and we're totally ready for the next trip (and mom even has an excel spreadsheet for packing now).




Zoë is talking (gibberish) non-stop now, with a few intelligible words thrown in every once and a while.  She consistently says 'please' (reminders are needed 50% of the time) and has uttered a 'thank you' every now and then.  She has peed in the potty many times!  Yesterday she even asked to go potty and then WENT!  We aren't doing any formal training, yet, but figure once winter break rolls around we'll commit to the naked three day training period and have her trained before she's 2 (of course, I'm sure she'll have other ideas...).
Having a chat with Mom.

Throwing rocks with Dad.

Looking out the window on the ferry.

She's still obsessed with her baby doll AND any babies she sees when we're out and about.  She actually calls most small children 'baby' and sometimes I have to remind her that the one she is referring to is actually older than her!  There is a small baby at daycare that she took a great interest in last week when she went for a day...I'm sure it's going to drive Lesley nuts how obsessed she is.  :)  Dropping her off at daycare last week wasn't nearly as traumatic as it was last year.  I know she has so much fun there, is so well taken care of, and probably enjoyed her busy day way more with all of the kids there than she does alone with me.  I am just sad because I don't get any more time to play.  :(
Beautiful, beautiful girl.

She insists that I come play with her sometimes, which is heart-melting.  She'll demand that I stand up and do "Ring Around the Rosie" with her and then twirl and twirl and twirl.

Tuesday, July 29, 2014

SUMMER! Week 3, 4, 5

Ahhhhh, I got way behind!  Here's a quick rundown of what we've been doing...then I'll do an update about Zoë's progress from the doctor last week and our recent adventures in pacifier-less sleep.

Summer Day 15: S'mores with Dad
Saturday brought along another BBQ at home with lots of fun people.  Zoë, as always, enjoyed the s'mores.  She went to bed at 10:00.  I'm blaming the Fourth of July...but we found out throughout this week that it wasn't just a one-night thing.  She's had a terrible time sleeping this week.  Not sure if it's teeth, or the heat, or just a sleep regression.  But it's been miserable.  She cried for an hour in her crib on Monday night and it broke my heart.  Trying to get her on a schedule before we go to Cleveland on Thursday was the plan...but she's been protesting the plan.  As usual.

Summer Day 16: Celebrating Grandpa's birthday.
Sunday was Grandpa's birthday, so Grandma and Grandpa came over for a BBQ, which was wonderful!  I say it often and mean it: Zoë's very lucky to have four grandparents in her life on a regular basis who loves her to pieces.  And I'm lucky to watch them love her, too!  The corn was a big hit as usual, and Zoë even devoured her own cob this time (she actually made a pretty big dent in it, suprisingly enough).

Summer Day 17: Zoë says, "I can't believe 6th graders have such a hard time with lockers.  I can do two at once!"
On Monday Zoë and I took a trip to McKnight to pick up mom's keys and ended up doing a few hours worth of work moving boxes into her new classroom.  Zoë was a champ, but all good things must come to an end.  In the early evening, we met the Nelson family at the Angle Lake Spray Park (which we have never been to).  Zoë was so tentative with the water and did one good lap around with one of the older daycare kiddos before she became super clingy and refused to go back in.  I just wanted to have her splash around and have fun!

Summer Day 18: Mom had a productive day with her grizzled PLC while Zoë played with Grandma and Grandpa
Tuesday meant I spent the day at school working with my new amazing PLC (woo hoo!) and Zoë got to spend the day at Grandma and Grandpa's house in Tacoma.  She LOVED the sprinkler (which is a good step in the right direction since it was just yesterday that she hated the water).

Summer Day 19: Tickle Toon Typhoon concert...but someone was more interested in playing in the water.
Wednesday brought a really fun event: the Tickle Toon Typhoon concert at Kent Station.  I honestly don't remember them from childhood (give me Tim Noah and Raffi and I can sing you a bunch of songs!), but apparently they've been around forever.  My parents were very excited to go so we met them (and Zoë's boyfriend, Ethan with his parents) for lunch at Panera and then the concert.  I would say that Zoë listened to about two songs of the hour long concert and spent the rest of the time playing in the splash park with Dedo.  I was thrilled to see her run through the water since the week before when we took her to play she wouldn't spend more than two minutes running through it.  Suffice it to say, she's hooked on splash parks, now, and I'm excited to take her to more of them throughout the rest of the summer.

Summer Day 20: Red eye to Cleveland
At 10:30pm we boarded a plane for a four hour ride to Cleveland.  Zoë finally fell asleep two hours into the trip in Chris' arms (thank goodness for him...he is a trooper for being able to relax while still holding a twenty pound toddler in his arms) and then was a champ the next day, too.

Summer Day 21: Made it to Cleveland!

We stayed at my Teta and Uncle Larry's house about an hour outside of Cleveland and had a great time!  My parents and Angela made the trip, too, and we had lots of good family time, including seeing my Baba a couple of times.  She was even convinced to come out to Teta's house and we got tons of good family pictures.

This one might need to be photoshopped.  We have an amazing one of Baba smiling but Chris isn't in it...

Four generations!

Zoë and her lovely Teta

My Teta was so excited when Zoë finally let her hold her!
Summer Day 22: Family reunion!  Lots of Tetas and Babas in attendance.

Summer Day 23: Winery Tours
 Teta and Uncle Larry live out in wine country and are within a few minute's drive from several great wineries  We had fun and Uncle Skip, Michelle, and their two girls joined us, too!
It's all in the family, apparently.  And obviously Chris hasn't been affected yet.  

Summer Day 24: Two Tetas and a baby (and a date day at Cedar Point).
Chris and I snuck away on our last full day in Ohio to go to Cedar Point!  We arrived there before the park officially opened, and rode 18 roller coasters by 4:30pm.  We were very proud of ourselves and had a lot of fun!  We'd never done an amusement park together, so doing 'firsts' is still fun for us.

Summer Day 25: Last day in Cleveland and now on to Minneapolis!
 On our way out of town we stopped by Baba's place again to spend a few last minutes with her.  I'm so thankful we went and that I got to see her after all of her medical issues this past 8 months.  She was pretty smitten with Zoë, too.  :)

While Chris headed straight home, Zoë and I boarded a plan on our own to go visit the Nuckleys in Minneapolis.  We were lucky because the plane wasn't full, so Zoë had her own chair.  She was super wiggly and didn't nap at all on this day, but she ended up being a model citizen, once again.

Summer Day 26: First juice box, time with auntie Nicole, (and Uncle David) and new pal Stella.  Perfect summer day.
 On our second day in Minneapolis Nicole and David took us to a fun BBQ outside where Zoë enjoyed her first juice box ever (seriously, she sucked it down...didn't even set it down until it was gone).  She is enamored by Stella and I think the feeling is pretty mutual.

Summer Day 27: Lots of fun playing outside today!

Summer Day 28: Playdough glee!
 My favorite part about visiting Nicole is that no matter how long it's been since we've seen each other it is oh-so-easy to fall back into our friendship and talks.  Chris LOVES (sarcasm) it, too, because I always end up having phone conversations like, "Nicole has a new craft room with really cool furniture that I think I need.  Nicole has a membership at the Y and with the childcare there it really makes sense for us to have a membership.  Nicole and David and Stella do music lessons on Saturdays together and the same company does music lessons in Seattle."  Etc., etc., etc.

Summer Day 29: I sure do love this little girl.  BBQ fun. 
Summer Day 30: Thingamabobs?  I've got twenty.
I swear I did not force her to do this.  It was completely spontaneous at dinner time and hilarious.

Summer Day 31: Silly in the bathtub. 

Summer Day 32: Love seeing old friends.
 My friend Carlie and her son Max (a month older than Zoë) were in town from Colorado this week and I'm so thankful we got to go spend a couple of hours with them.  It's fun to be a mom at the same time as a good friend and see how cute the kiddos are side by side.

Summer Day 33: Playing dress up on a really rainy day.

Summer Day 34: 18 month drs appointment followed by a treat for shots and then
a fun crafty playdate with one of our favorites.

Zoë's 18 month appointment went so well and she BARELY shed a tear with her shot, I was shocked.  She started to cry, looked up at me, and then stopped.  So, she got a birthday cake pop (let's be honest, she was going to get one anyway).  And then we went and did some crafting with one of her boyfriends to make her second stepping stone.  It's now super fun to see them side-by-side in the garden and see just how much she's grown in a year!  I can't wait until we have a garden full (ok, I totally can...please don't grow up little girl!).
Summer Day 35: Day one of the no-pacifier project means baby girl is fighting bedtime.  Bigtime.
 More on this later.  Suffice it to say, this has been a ROUGH week.

Summer Day 36: Uncle Connor's going away party.
Uncle Connor is moving to Alaska to teach middle and high school students in just two short weeks.  We went to his going away party on Saturday and had a wonderful time.  Their family has such nice friends that it makes parties like these very fun to go to.  And, of course, it's always nice to have a little hip-hugger (Z) that's extra cute.