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It's been a busy month and I feel super guilty for not writing an update. Zoë's going to have a gap in her baby book! :)
This summer has been the cling-to-mom-all-the-time summer and it's been a bit rough in that regard. I feel so badly for Chris because there are times when it can be Mom and Only Mom to help her calm down or hold her or...just be.
The biggest news is that a few weeks ago Zoë had another swallow study and she is not doing any better in that department. The occupational therapist says it's
definitely a timing issue (she just doesn't know how to swallow thin liquids and the timing of her epiglottis closing sucks) but we don't know if it's a timing
and structural issue. Typically, if it's only a timing issue, kids will get better at swallowing and this issue will resolve on its own. Unfortunately, Zoë's not getting any better at swallowing. Because Zoë was born so early she may have a cleft in her throat which means that no matter how fast her epiglottis closes there may still be a gap where liquid can go down into her lungs. The tricky thing is that usually if it's a structural issue, it doesn't matter how much thickener you add and the kid will still have trouble with some of it penetrating into the lungs. What we've seen consistently is that once we get to "nectar thick", Zoë doesn't have any penetration...so, she's kind of an enigma. We will be referred to an ENT at Children's Hospital where they'll probably tell us she needs a scope and will have to be put under anesthesia to do it because of her age (too young to be able to explain it to her and too old for her not to be able to fight it). Once scoped, if they find that it's a structural issue as suspected, they can put in a kind of dissolvable goo that will add structure to the back of her throat and allow her to learn to swallow properly. The therapist said that usually, but the time it dissolves, kids can deal with the structural difference and do just fine. Sometimes they go right back to their old swallowing habits at which point she'd need another surgery to add more permanent structure to her throat.

This, of course, terrifies me. I keep picturing my tiny little baby on a huge surgical table. It's definitely a new hurdle and one I was hoping we wouldn't have to jump. But, it's here and this will make her better. I keep telling myself that this is NOTHING compared to the health problems we could be dealing with right now and that helps a little bit.
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| Trip to Orkila. Future Goody Glacier in the house! |
In more fun news, we went camping on Orcas Island a couple of weeks ago and had so much fun! It took us forever to get up to the island (of course, ferries), but we were well prepared for the rain the first night and any bouts of hunger (I WAY overpacked snacks). We were not prepared for the inconsolable wailing from Zoë at 1 in the morning the first night. Chris took her into the car and slept with her, uncomfortably, for the rest of the night, bless him. She did much better the second night. :) We went and visited Orkila, which was fun to walk around and share with Chris and picture Zoë there in 8 short years. We had delicious pizza in Eastsound, walked around the shops, and had marshmallows around the fire (we were lucky to have because the first night there was a burn ban) the second night. Lots of fun and we're totally ready for the next trip (and mom even has an excel spreadsheet for packing now).




Zoë is talking (gibberish) non-stop now, with a few intelligible words thrown in every once and a while. She consistently says 'please' (reminders are needed 50% of the time) and has uttered a 'thank you' every now and then. She has peed in the potty many times! Yesterday she even
asked to go potty and then WENT! We aren't doing any formal training, yet, but figure once winter break rolls around we'll commit to the naked three day training period and have her trained before she's 2 (of course, I'm sure she'll have other ideas...).
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| Having a chat with Mom. |
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| Throwing rocks with Dad. |
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| Looking out the window on the ferry. |
She's still obsessed with her baby doll AND any babies she sees when we're out and about. She actually calls most small children 'baby' and sometimes I have to remind her that the one she is referring to is actually older than her! There is a small baby at daycare that she took a great interest in last week when she went for a day...I'm sure it's going to drive Lesley nuts how obsessed she is. :) Dropping her off at daycare last week wasn't nearly as traumatic as it was last year. I know she has so much fun there, is so well taken care of, and probably enjoyed her busy day way more with all of the kids there than she does alone with me. I am just sad because I don't get any more time to play. :(
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| Beautiful, beautiful girl. |
She insists that I come play with her sometimes, which is heart-melting. She'll demand that I stand up and do "Ring Around the Rosie" with her and then twirl and twirl and twirl.